So I met another cleftie in real life today! I was working at Pier 1 and a shopper came in who I spotted almost immediately. We passed each other a few times on the sales floor and then she came to my register to check out. She said “We have something in common!” and I smiled and told her that I’d been debating saying something but didn’t want to be rude.
In our brief conversation she mentioned a husband, and so I felt it was okay to ask if she had any children- she told me that she had two. I hesitated before asking if either of them had been born with a cleft as well. They hadn’t!
Despite that being completely anecdotal evidence of being able to have a family unaffected by clefting, I felt so happy and hopeful that I wanted to cry after she left. It’s nonsensical to think about things like that as much as I do, especially since I don’t even have a boyfriend, but the fact remains.
I’m a crazypants, disregard.
Yay meeting other clefties! <3
That’s awesome! Good on you, that’s a lot of people! <3
I may be going out on a limb here but I was wondering if anyone with a cleft lip and palate lived in New Jersey? I’ve been wanting to meet up with someone for the longest time now and just chat about our experiences and what we’ve been through. I think it would be pretty cool! Message me if you do and maybe we could arrange something?
This isn’t my real blog either by the way, i follow way too many people from my school on my normal blog. I just use this one to blog about my true feelings when something’s up!my normal blog is kings-of-le0n.tumblr.com :)
Anyone here in the New Jersey area?
Up until I started preschool I didn’t do much of anything. In fact for the first two years of my life I was never allowed outside. I was born on September 23, 1996. Exactly two months before I was supposed to be born. In addition to being premature, I was/ still am a cleft lip/ cleft pallet. I spent the first few weeks of my life in the hospital, and after that I was sent to The children’s hospital in Denver. I had my first surgery at eight weeks old. The first two years of my life I had five major surgeries. This was why I couldn’t leave my house. I couldn’t risk infection. I don’t remember any of it, being so young. But I do know that my Aunts and Grandma came to visit me every day. I would stand in front of the windows watching and waiting for them to all come to our house to see me. It was what every child wanted. To be loved and doted on. But that wasn’t enough for me, I wanted out. Now after those two years is a completely different story. At age three I went outside for the first time. In all of the pictures my parents have of my first adventure outside, I look kind of angry. I don’t know why. Possibly it wasn’t what I expected. Or maybe I didn’t like pictures. Heck, maybe I just had a mean face. Aside from going outside for the first time nothing interesting happened in my third year of life. I did what all normal kids did. At age four I went to preschool. Again, nothing interesting happened other than that. Then age five comes around. I’m in my second year of preschool. That’s when the other kids got mean. Sure I had a few friends, but for the most part I was bullied. The other kids would pull my hair, make fun of my speech impediment, and how my face looked because of the surgeries that I had. I don’t know why the other children didn’t like me. I was absolutely normal. The only difference was how I looked, and sounded. Now looking back, I don’t blame them. I didn’t seem normal, and they rejected me. It may not be right, but it’s how children are. They have a definition of normal, and nothing will change that. I hope that when I have children that they might be willing to cherish the “abnormal” children and be nice. Things will be different then. I guess time will tell.
Thanks for sharing your story! <3
Alright, this video is horrible quality. But, since I’m not sure you are in the group on Facebook, I wanted to share. :) Also your transformation makes me anxious for my own jaw surgery in Feb! http://youtu.be/XZRm8XTsCoE
Jessica! <3 This is an awesome video. I love to see videos going up and you guys putting yourselves out there and expressing your ideas and yourselves!
I wish you all the best wishes with your jaw surgery! <3
That is amazing! What an opportunity to take what you’ve been through and make something good out of it :)
I had my appointment with my surgeon on Tuesday. He told me that unless something happens, I feel a concern, or I want to volunteer to talk to other kids or even parents; I do not need to see him again.
No more surgeries, no more consults, no more stitches, no more healing, no more worrying if I am going to look like a monster to my boyfriend or his child after surgery, no more pain, no more anything.
My nose is straight, I can breathe, and I have a button nose.
I don’t think any non-clefty person will understand the pure joy of hearing him say “I don’t need to see you anymore.”
I know I’m not perfect; far from it. But hearing him say “there’s nothing left for me to fix” feels pretty damn fucking holy shit good. Oh my god.
It’s an incredible feeling! I’ve been done since last summer and I got my ‘Well, you know where to find me if you need me. But you’re done.’ and I still don’t quite believe it!
Congratulations on being done <3
I’m still undecided as to what specific group or field I want to work with for Speech Therapy once I get certified in a couple years. My options are the elderly, children with cleft lip/palate, people that have suffered from strokes, injured war veterans with certain swallowing or speech impediments due to injury, adults and many more options. I’m still looking into what specifically I would like to do, although I am planning/ would love to shadow a Speech Pathologist before I finish undergrad.
If you or anyone you know was born with cleft lip/palate you should follow 100Watts on Facebook! Once we reach 30 likes we can start our mission of bringing people together!
Hey guys! There’s a facebook forum thing starting up! You should all go like it and spread our little community :)